I have decided to take this blog in a somewhat new direction. Because I have lived in a rehab hospital for just over 19 years I have a good deal of experience with institutional living and believe that I have a lot to share with those who read this blog. I will still continue to write about other things that happen in my life, but I will focus more on my experience living in an institution. I hope what I write will be informative and helpful in some small way.
Something that has been happening to me for quite some time is that my doctor rarely if ever discusses things that he orders. I have tolerated it because I know I have the right to refuse anything. This past Monday, one of the nurse came into my room the CBS (Capillary Blood Sugar) machine and said that she had to take my blood sugar. I figured she had made some sort of mistake because she is not one of our regular nurses. I told her that I don't get my blood sugar checked. She then went to the charge nurse about it and she came into my room to tell me that my doctor had ordered it taken three times a week or two weeks because I had recently started getting tube feeds and he wanted to make sure it wasn't affecting my blood sugar.
I have no problem with such things being done, but it would certainly be nice if my doctor would take a couple minutes to tell me that he is going to order something and why. I honestly don't think that is asking too much. When he doesn't tell me, I feel like I have no control over my life. I will be speaking to him about this issue the next time I see him. Hopefully he will listen to what I have to say.
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